I have written before about our daily schedule but that just looks at the time frame. Today I am putting it all out there. I have taken a page from Julia's logbook (10/28/11) and I am going to share with you her blood glucose (BG) readings for the day. Every time we get a reading, she gets poked with a needle.
7:03am BG 68 Julia wakes up saying she is feeling shaky. That is how she describes a low.
7:25am BG 123 Recheck and before breakfast test combined. This is a much better start to the day.
10:07am BG 50 She told her helper she felt shaky. This is at school during class. I get a text with this info.
10:24am BG 125 Recheck and recess time check. I get another text with this info.
11:48am BG 83 Lunchtime check. Another text for me.
4:09pm BG 54 Julia is feeling shaky again. This is at home.
4:24pm BG 111 Recheck - back in range
6:05pm BG 251 Dinner time check
9:53pm BG 307 Evening check. This is high. We give more insulin and will recheck in an hour.
11:00pm BG 370 Recheck - That doesn't seem right.
11:02pm BG 372 Recheck - Change insulin pump site in case of poor insulin delivery
12:05am BG 340 Recheck to verify new site is working - not coming down as much as I would like
12:31am BG 334 Recheck still coming down just slowly maybe it is working?
2:00am BG 383 Apparently it is NOT working. Another site change and insulin dose given.
3:01am BG 262 New site working. Time for some sleep.
8:29am BG 122 Let's see what today brings...
Julia's range is supposed to be between 70 - 130 during the day and 100 - 150 overnight. We have days that are terrific and in range. We also have days that are horrendous and nothing makes sense. Just because she is pumping and testing regularly does not guarantee that she will be in range. Everything can effect her blood sugar. Being excited, being nervous, physical activity, lack of physical activity, anything can send her low or high. We are told that a number is just a number not a grade but it is so hard to not look at the meter and think that it somehow reflects on your ability as a parent. Seeing a random 300 pop up can be so frustrating or stubborn highs that won't come down. And the lows. Lows are so scary. Hearing her say she feels shaky, seeing her get so pale, I hate it.